We work with a team of Ambassadors who guide our work and give us feedback.
Learn MoreAbout us.
We are the global network of people with Down syndrome and their families.
Together, we speak up for the human rights of all people with Down syndrome around the world.
Our vision is a better world where all people with Down syndrome are fully included in society.
Our goal is for people with Down syndrome and their families around the world to have a say in all laws, policies and other decisions that affect them.
The projects that the DSi Network is working on right now:
Health equity
We are working with Humanity & Inclusion to find out more about health equity for people with Down syndrome and intellectual disabilities.
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Self advocacy
We work with national organisations to develop self-advocacy in their countries and we support self-advocates directly to advocate for their rights at important global events.
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Kami
We have teamed up with creative agency Forsman & Bodenfors (F&B) and global digital modelling agency The Diigitals to create the world’s first virtual influencer...
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Listen Include Respect – UK
We are training self-advocates with Down syndrome and intellectual disabilities, to become consultants on inclusive organisations.
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Inclusive participation with CAST
We are working with our UK member, Down’s Syndrome Association (England, Wales and N.I.), and the DSi Ambassadors to explore solutions to the challenge of...
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World Down Syndrome Congress
The World Down Syndrome Congress is a unique opportunity for members of the global Down syndrome community to meet and share knowledge, insight and experience.
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Listen Include Respect
We are working with Inclusion International developing international guidelines so organisations can make their work inclusive.
Learn MorePeople with Down syndrome and their families know best what needs to change in their communities.
We empower people with Down syndrome and their families to speak up for their human rights.
Andrew Domahidy
Australia
"Being part of the DSi Network helps me to show the world that we do not have to stick to the limits that other people set for us."
Serina Abdulah
Ghana
"DSi has shown me that my life matters and I believe that the lives of all people with Down syndorme matter too."
Morgan Maze
Indonesia
"The DSi Network has helped me become an activist in the disability movement in Indonesia and overseas."
Eileen Dunne
Ireland
"DSi has helped me to speak up for myself and other people with Down syndrome."
Favour Onyisi Jideonwor
Nigeria
"DSi is helping me to speak up for people with Down syndrome in Nigeria where society sees us as weak and idiots. Now I feel like a superstar!"
Ximena Rodriguez
Peru
"The DSi Network is supporting me to defend the right to education for people with intellectual disbailities."
Become a Down Syndrome Advocate!
Sign up to our 'Advocate' mailing list to learn how you can speak up for people with Down syndrome and disabilities.
People with Down syndrome and their families have a stronger voice when they work together as Down syndrome organisations.
Our network includes organisations in 113 countries.
We work together to plan and execute advocacy campaigns that can be delivered globally in a coordinated way to have the greatest impact.
Down Syndrome Family Network
Trinidad and Tobago
"The DSi Network has supported us in our successful advocacy and activism for a more inclusive society."
National Down Syndrome Society
United States of America
"DSi has connected our organization with like-minded partners that we work with to share best practices so we can support our community."
Turkiye Down Sendromu Dernegi
Turkey
"The DSi Network keeps us up to date with good practices and new information in the different fields relevant to Down syndrome."
It is vital that information about Down syndrome is accurate and up to date.
We work with experts to provide accessible information on the key topics relevant to people with Down syndrome.
People with intellectual disabilities have the right to take part and be included.
People with Down syndrome have the right to work and can be valuable assets to businesses.
Children with Down syndrome have a specific pattern of strengths and weaknesses. Most children will need extra support to learn and grow.
Down syndrome is diagnosed by examining the number and structure of a persons chromosomes.
Down syndrome (or Trisomy 21) is a condition in which a person has an extra chromosome.
The work that we do is only possible thanks to the help of our brilliant supporters.
Support DSi.
There are lots of ways that you can support us. Whether you make a donation, fundraise for us or volunteer your time, your support will help improve the lives of people with Down syndrome worldwide.
Latest updates:
Take part in our Health Equity Consultation
Tell us about health in your country by completing our survey or running a focus group.
Introducing Kami!
We have teamed up with creative agency Forsman & Bodenfors (F&B) and global digital modelling agency The Diigitals to create the world’s first virtual influencer with Down syndrome.
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